About the Book
My Journey with Parkinson's Disease: A Story of Hope and Personal Transformation
This memoir invites readers into the personal story of Robert E. Spekman, who has lived with Parkinson's disease for more than thirty years. What began as a life changing diagnosis became the foundation of an inward journey toward honesty, healing, and acceptance. This book offers a clear and compassionate look at how illness can reshape identity, priorities, and the meaning of a full and connected life.
"I learned to rethink my priorities and reshape my life. My hope is that by sharing my story I can help you reflect on your own."
A Story That Began in Silence
Robert was diagnosed with Parkinson's disease on January 2, 1995. At the height of an accomplished academic and consulting career, the diagnosis felt devastating. He kept the news private and continued his work while quietly struggling with fear, anger, and uncertainty. Journaling became his private outlet during these early years when he found it difficult to speak openly about his condition.
The memoir captures this early period of denial and secrecy and then follows Robert's gradual shift toward acceptance. It is a detailed and heartfelt look at how a person can rebuild purpose and meaning while living with a chronic illness.
Core Themes
Denial and Internal Struggle
Robert describes the emotional turmoil that followed his diagnosis. Even as he continued teaching and consulting, he hid the illness and was unable to share his worries with most of the people in his life. Much of this period was marked by silence and internal conflict.
Healing and Self Reflection
Through journaling and therapy, Robert began to explore the emotional weight he had been carrying. Therapy played a central role in helping him confront feelings of shame and sadness and to understand that secrecy was preventing healing.
Acceptance and Transformation
Acceptance arrived slowly yet meaningfully. Robert embraced self care practices such as yoga, mindfulness, and counseling. Over time, he discovered a more compassionate way of living. Parkinson's did not diminish his life. It reshaped it.